Ethical implications of patient and public involvement in health research

Meaningful and Safe: The Ethics and Ethical Implications of Patient and Public Involvement in Health and Medical Research

Patient and Public Involvement (PPI) in research involves researchers working in collaboration with patients, carers, families, service users or the public to plan, design, manage, conduct, disseminate and translate research.

It is imperative that researchers, research ethics boards and academic institutions training health professionals are educated in ethical PPI to build capacity for impactful partnerships that reflect key ethical principles, values and standards.

This two-hour workshop will offer learners an overview of key ethical considerations in the conduct of Public and Patient Involvement in health and social care research, and practical advice on how to engage diverse research partners in safe and meaningful collaborations.

This workshop will close with the official launch of the new publication of an edited book by the workshop leaders which offers in depth chapters on each of the key ethical principles and their applications, written by contributors and their PPI collaborators

This event may be recorded for future promotional use by University of Limerick.

All venues are wheelchair accessible but should you have any specific accessibility queries, please contact us at: Research@ul.ie

Speakers

Dr Jon Salsberg is an Associate Professor in Primary Health Care Research – Public and Patient Involvement (PPI) at the School of Medicine, University of Limerick, Ireland, and Adjunct Professor in the Department of Family Medicine, McGill University, Canada.

Jon is the Co-Principal Investigator of PPI Ignite in University of Limerick, which is part of the national PPI Ignite Network that promotes excellence and builds capacity for public and patient involvement in health and social care research in Ireland. See www.ppinetwork.ie

Jon is co-author of Canada's Guide to Researcher and Knowledge-User Collaboration in Health Research, was a founding member of Participatory Research at McGill (PRAM), McGill University, Montreal, Canada, was inaugural Co-Chair of NAPCRG's Participatory Health Research Working Group, and is on the executive committee of the International Collaboration for Participatory Health Research.

Jon has undertaken partnered research involving a broad range of stakeholders including patients, health practitioners, community organisations, policy makers and health service decision-makers, and has worked extensively with Indigenous communities, particularly the award-winning Kahnawake Schools Diabetes Prevention Project.

Jon is Co-Editor of the recently published book, Meaningful and Safe: The Ethics and Ethical Implications of Patient and Public Involvement in Health and Medical Research, (2024) by Ethics Press.

Dr Virginia Minogue is a research management consultant, adviser, coach and mentor. Virginia is currently Chair of the Research Ethics Committee in Tusla Child and Family Agency. She previously led the PPI in research and the knowledge translation, dissemination and impact workstreams for HSE Research and Development. As an experienced Senior Manager in the Public and the NGO sector, Virginia has worked at national, regional and local level, leading on commissioning, research policy, strategy and governance. She has worked in research management for NHS England and for a number of NHS Trusts. Virginia also has wide university teaching experience.

Virgina has an extensive history of involving service users, patients and carers in all aspects of commissioning and research. She is also an experienced charity trustee and has worked for a number of charities. She is a member of IPPOSI and co-chair of the EUPATI Irish Platform. Virginia is Co-Editor of the recently published book, Meaningful and Safe: The Ethics and Ethical Implications of Patient and Public Involvement in Health and Medical Research (2024) by Ethics Press.